My niece was born yesterday with a giant melanocyte that covers her buttocks, groin, and all of her genitals as well as the entire back of her right thigh. It’s possible that she was born with cancer, but we are waiting for specialists to diagnose what’s going on with her. She is so sweet, vulnerable and small and I’m feeling like this is so unfair. I’m so frightened and am having a hard time remaining strong for my brother and sister-in-law. Due to the pandemic, I haven’t been able to see her, but I want to hold her and tell her that it will all be okay. She has no idea what is happening. She is hungry and just wants food. I’m so worried and I don’t want to lose her.
C: Niece born with mole that covers her lower body
T: I wonder if she’s going to live
A: Call my brother every few hours for an update, procrastinate with work, wonder how I can help, wonder how the little one is feeling, feel overwhelmed and worry for her future. feel powerless to do anything for my brother and sister-in-law
R: Have so much sorrow
T: We don’t know what’s happening yet
A: Try to deal with the uncertainty and provide my brother with support, tell him that I’ll always be here for her, cry, drink, eat whatever I want, think about how unfair life is
R: Have difficulty with the uncertainty
I’m struggling so much. She is so small and beautiful and I don’t know what to do. I don’t want to lose her.